Catch Up

Whoops have neglected this again ok a quick catch up:-

It wasnt the best appointment and although i was gutted when we came out, i have sat and digested what was said!!! The leak has always been there and although it was better after the repair we knew at some point it would cause a problem.... They need to do the MRI to see how much blood is leaving the heart and how much... is just sitting there, as the right side isnt working as well as it should they need to know its doing enough to keep him going for now.... we all know we face transplant at some point and hopefully we can still wait on that one, but im a great believer in what will be will be...Sam continues to potter along and thats good enough for me winter is never the best time anyway. My son is my hero and while he continues his amazing fight we will be right beside him!!! Thank you to each and everyone of my amazing friends who have text phoned, messaged and listen to my moans and fears the hard road we travel would be much harder without you all. xxxx

Have received confirmation that Sammy is now on the waiting list for an MRI, it also confirms the leak is worse :( he is now listed as having hepatomegaly which i think just means inflamation of the liver? Thanks for all your support xxx



So thats whats happened since the appointment

This blog as always is dedicated to James, Katie and Zoe and all heart angels gone too soon xxx