Its been a while!!

Just remembered this poor neglected blog so thought i would resurrect it. 

Well little man has carried on his usual rollercoaster ride adding his liver to the list of problems he has, but still he faces life with a big smile. One day when im brave enough i will read back over my words to see what life used to be like :-)

This year we will see him reach double figures a milestone that seemed so unreachable when he was born and despite having seriously crap odds he has kept going, showing them all they didnt have a clue. We will be having a celebration of what we have all as a family come through with a big party in December

Before then i am sure we will have one or two appointments and hopefully a few meet ups with my fellow heart mums. Our love at the moment is with Vonny whos dad is poorly in hospital and any other heart hero who is in hospital

This blog as always is dedicated to our angels who will never be forgotten especially James, Zoe, Lewis, Ellen and Katie xxx